Compassionate Allowances
The Social Security Administration is launching a new initiative called Compassionate Allowances. The goal of this new program is to expedite the processing of benefit claims from people with the most severe disabilities and illnesses.
The goal of the program is to reduce the wait time for approval for the most vulnerable members of society from months down to days. The current list of disabilities and illness which are covered by the program consists of 25 cancers and 25 diseases. The list is not all inclusive and is expected to grow overtime. For example the SSA has been conducting hearings on stroke and other brain injuries, indicating they are considering this area for inclusion in the Compassionate Allowances initiative.
It appears that Compassionate Allowances is being developed as a replacement for or enhancement of the Quick Disability Determination program (QDD). The QDD was originally created to make the approval process faster for disabled people using readily available information about the applicant and computer generated models about their disability.
List of Conditions (current as of 3/11/2009)
Acute Leukemia
Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
Alexander Disease (ALX) – Neonatal and Infantile
Amyotrophic Lateral Sclerosis (ALS)
Anaplastic Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
Astrocytoma – Grade III and IV
Bladder Cancer – with distant metastases or inoperable or unresectable
Bone Cancer – with distant metastases or inoperable or unresectable
Breast Cancer – with distant metastases or inoperable or unresectable
Canavan Disease (CD)
Cerebro Oculo Facio Skeletal (COFS) Syndrome
Chronic Myelogenous Leukemia (CML) – Blast Phase
Creutzfeldt-Jakob Disease (CJD) – Adult
Ependymoblastoma (Child Brain Tumor)
Esophageal Cancer
Farber’s Disease (FD) – Infantile
Friedreichs Ataxia (FRDA)
Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult
Gallbladder Cancer
Gaucher Disease (GD) – Type 2
Glioblastoma Multiforme (Brain Tumor)
Head and Neck Cancers – with distant metastasis or inoperable or uresectable
Infantile Neuroaxonal Dystrophy (INAD)
Inflammatory Breast Cancer (IBC)
Kidney Cancer – inoperable or unresectable
Krabbe Disease (KD) – Infantile
Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent
Lesch-Nyhan Syndrome (LNS)
Liver Cancer
Mantle Cell Lymphoma (MCL)
Metachromatic Leukodystrophy (MLD) – Late Infantile
Niemann-Pick Disease (NPD) – Type A
Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
Ornithine Transcarbamylase (OTC) Deficiency
Osteogenesis Imperfecta (OI) – Type II
Ovarian Cancer – with distant metastases or inoperable or unresectable
Pancreatic Cancer
Peritoneal Mesothelioma
Pleural Mesothelioma
Pompe Disease – Infantile
Rett (RTT) Syndrome
Salivary Tumors
Sandhoff Disease
Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
Small Cell Lung Cancer
Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent
Spinal Muscular Atrophy (SMA) – Types 0 And 1
Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent
Thyroid Cancer
Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent
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2 Responses to “Compassionate Allowances”
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Nedd financial help where do I go for it.
can`t pay bills I am 76years young
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Andrew
The program did not work for me. They thought I had to be terminal, I have a rare disease (2) it is found on the rare diseases site. I have been waiting now over 10 months. My disease is Hypersensitivity Pnuemonitis and because mistakes like this I am going to die if not traeted soon. Exposed to mold for 4 years or more without treatment for same amount of time. The life expectancy without treatment is 5 years. Only 2 % of all Interstitial Lung Disease is this type. I can read my blood work and tests and SS cannot.